ABOUT US
The Pan-Asian Consortium for Treatment and Research in ALS (PACTALS) was established in December, 2014. The concept is similar to other regional existing Consortia namely the North-East Amyotrophic Lateral Sclerosis (NEALS) in the United States and European Network for the Cure of ALS (ENCALS). PACTALS represents a large patient population and very active research groups in the Asia – Pacific region.
AIM & MISSION
Our mission is to establish an active collaboration of clinicians and researchers from the basic, translational and clinical neurosciences who will promote new discoveries into ALS, providing hope for those individuals and families whose lives are devastated by this condition.
We aim to build genuine partnerships across medical institutions and universities with involvement of industry, the not-for-profit sector and the wider community as a vital part of our research and activities.
OBJECTIVES
1. Developing an Asia-Pacific network of researchers and clinicians working with ALS/MND that:
- is recognised within the international ALS/MND network
- can work collaboratively in an efficient and effective manner
- will attract pharmaceutical companies to conduct trials in Asia-Pacific region
- will support the education and training of members to achieve the overall objectives
2. Establishing a Patient Registry within the Asia-Pacific region that will facilitate the collection/storage of clinical data.
3. Initiating collaboration between funding agencies in Asia-Pacific to collectively sponsor investigator-initiated clinical trials
WHO CAN BE MEMBER
Clinicians, researchers and allied health professionals working within the ALS/MND community as well as representatives from ALS/MND associations and International Alliance of ALS/MND Associations who express an interest to be part of the group and its activities.